The Challenge

There is a “Silent Crisis” in housing for adults with intellectual and developmental disabilities (IDD). Rarely are individuals with IDD mentioned or included in discussions about those in need of affordable housing. Over the last 30 years, children with IDD have grown up enjoying the benefits of inclusive educational settings. But as adults today, most are isolated, living at home with aging parents, and have few options for living on their own.

The institutionalization of people with disabilities was common throughout much of the 20th century. In 1999, the United States Supreme Court decision in Olmstead v. LC required states to eliminate unnecessary segregation of persons with disabilities and to ensure that persons with disabilities receive services in the most integrated setting appropriate to their needs. Although the intended goal of community integration was undoubtedly a positive step for people with IDD and their families, the execution has fallen short of the desired outcomes. Funding and planning for alternative and affordable housing options were overshadowed by the efforts to transition the individuals who were living in institutions into community-based settings.

Frequently, most people with IDD have been left with just two options: live at home with aging caregivers or in a supervised residential setting such as a group home or host home. Although these may be appropriate settings for some, those who wish to live independently are faced with the challenge of finding affordable, appropriate, and accessible housing.

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Facts

As of 2017, there were more than 235,000 Georgians living with an intellectual or developmental disability. 175,000 (75%) of these individuals live with a family caregiver. Of these, nearly 37,000 (21%) live with a caregiver who is 60 years or older. The number of people with IDD in Georgia who are living with an aging caregiver (60+) is at least: • 3.6 x the number of people homeless in Georgia • 75 x the number of subsidized housing units in Georgia for low-income persons with disabilities under the HUD 811 Project Rental Assistance Program.

Loneliness – 85% of young adults with developmental disabilities say they feel lonely most days.

Living in Poverty – Nearly one-third (32%) of people with an intellectual disability live in a household that is below the poverty line.

Lack of Employment – Only about one in four (26%) of working-age people with intellectual disabilities are employed. 63% of adults with disabilities who are unemployed want to work.

Lack of Independence – 87% of autistic adults live with their parents, but only 22% want to.

Living in Isolation – Loneliness and social isolation reduces life span as much as smoking 15 cigarettes a day.